I am sure there are many kinds of pain that are worse than migraine or cluster headaches. But it is the problem of Chronic Cluster Headaches that has haunted me most of my life and tonight is another of those nights when I can’t sleep because of the pain and I’m sitting in my chair and 2:45 in the morning. To be writing about the pain likely seems odd as well. But everything about cluster headaches are weird. If you are a chronic migraine or cluster headache sufferer, I’d like to hear from you. Anything that may have been helpful to you, I’d like to hear about and anything that you have tried that didn’t help at all, I’d like to hear about. I’m 68 years old at this time and can’t really remember a time in my life when I didn’t have a problem with headaches.
Let me share a little of my story on the topic and then if you can offer any insite it just might be that we could together come up with something that would be helpful. I’ve tried all kinds of doctors, medicines, surgeries, treatments and crazy notions always hoping that this would be an answer. Some have worked for a period time and given me hope and then have stopped after that time and left me back where I was. Just to be clear let me give you a quick look at my experiences. I’ve gone to the Diamond Headache Clinic in Chicago for 15 days but left in the same pain I came with. I’ve been to the Houston Headache Clinic for two weeks but didn’t get any relief. I’ve gone to the University Hospital in Little Rock for thirty plus years to their neurology department and tried anything they suggested to no avail. I’ve had Micro-Vascular Decompression at UAMS, Gamma Knife Surgery in Birmingham, Alabama to clip the trigimminal nerve, and most recently had the nerve stimulator installed which was supposed to suppress the pain as the headache grew. It worked for about 6 months before completely quitting being of any help and then had to be removed because of inflamation, but had stopped doing any good months before. I heard about some shots through the nostrils that were offered at the Renassaince Center in Little Rock that had been developed at Diamond Headache Clinic. I started taking those about three months ago. For a couple of months they too seemed helpful but they too have stopped doing any good.
All the different preventives that I’ve tried have failed to help. I’ve done the Tegratol, the different anti-inflamatory drugs, the anti-seizure drugs and the anti-depression drugs. None of these offered anything besides temporary relief for a short period of time. I’ve done the shots on the pressure points, the nerve blocking shots, the triptan drugs and the ergotamines and haven’t gotten any relief.
I’ve tried most every pain medication available and gotten some relief but it is short term and doesn’t keep them away for any length of time. I’ve gone on every kind of diet I know of to do without different foods in hopes of fnding out something I was alergic to but that too has been useless as far as I can tell. I’ve spent lots of time praying about it, had many others praying for some relief and even though I strongly believe in God and his power to heal anything it hasn’t gotten any better.
Do you have any ideas of something that has worked for you or someone you know? By the way I’ve also tried accupuncture and gone to Chiroprators by the score. If you have no answer but would like to share your story then please do. If you know a great doctor that is helpful, let me know. I’m tired of the pain and don’t see any relief coming so any help would certainly be appreciated.